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10/20/2014 2:15:16 PM
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Help Getting The Word Out

So as some of your know I have a baby wit ha severe heart defect. We have recently made a funding website we are trying to get mainstream and I am been through all my linkedin and facebook contacts as well as googled news story submissions and just went down the list. Does anyone have any ideas of additional things I can do to get the word out? I don't have any famous or at least well know people in my contact list to get this going. This is the article I have been posting. Oh I also did a few press releases as well. Ellie Mae Blackmon was born on August 25th 2014 with a severe heart defect known as Hypoplastic Left Heart Syndrome (HLHS). This rare birth defect affects only 1 out of every 2,500 infants and can be very deadly if not treated immediately. This defect is not easily detected unless you are looking for it and can cause many undiagnosed deaths. Detected at an early stage of the pregnancy, Ellie was diagnosed with HLHS and received partial treatment. There are 3 surgeries that take place over the first 4 years of life. After successfully surviving the first surgery, Ellie came home, happy to be with her parents and sister, and will hopefully remain home until returning to Medical City of Dallas and the wonderful staff who saved her life to continue treatment. The family of this baby girl have set up a funding website to help them get through their current financial issues and hopes to get ahead with any future financial issues that may occur over the next few years as they continue treatment. This is the link to their funding website http://phoenixnalcg.wix.com/elliesstory This is a link to their Facebook page, Ellie’s Story, where you can continue to follow Ellie’s progress as she courageously continues her treatment and even lives her life to the fullest with only half of a working heart. https://www.facebook.com/ellieourhero?fref=nf
English
#Destiny #chd #hlhs

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